Doug is not sure if his feet are getting more numbness. It's hard to tell because he already has some peripheral neuropathy on the soles of his feet from when he was on Velcade. So is it new numbness, or the same old? When we were talking about it and said "numb or number" for the first time, it sounded so funny - like dumb or dumber! Hey, ya gotta laugh sometimes! He reported it to the oncologist office, but the doc wants Doug to stay on Ninlaro and keep a close eye on his feet. He did ask if Doug was having any problem walking, and the answer is no.
The fatigue is still there. Doug is learning how to manage it. Naps are good!
We went to Colorado Springs today for Doug's blood draw, so in 7 to 10 days we should know if the Ninlaro is having any effect.
We've had a little rain lately. Not as much as we need, but we appreciate it.
Love to all.
Thursday, July 26, 2018
Friday, July 6, 2018
Ninlaro (ixazomib) started
Doug took his first dose of the Ninlaro on July 4. What a way to celebrate! He has had some nausea - Zofran works well to combat that. Yesterday, July 5, he was very fatigued. We drove to Walmart, 30 minutes away. Doug said for me to go ahead and drive. He thought he would be able to walk around the store, but after ten minutes he gave up and went to sit in the car while I shopped. Luckily it wasn't too hot. We don't have any plans to go anywhere soon, so he can rest as he needs.
So far, so good. We won't know how Ninlaro impacts his blood counts for a couple of weeks. And we won't know if it will cause problems with nerve damage yet. When he was on Velcade, it took several months before the nerve damage became evident and he had to stop the drug.
Colorado is having wildfires - one, the Weston Pass fire - is about 20 miles from our town. We can see the smoke, and yesterday the smell was very strong. It is not a danger to us; we have mountains between the fire and us. Hwy 285, the road we take to Denver, has been closed for several days.
We are praying for protection for the firefighters, and for the people who have had to evacuate their homes.
We are blessed, and we try to take nothing for granted.
Love to all.
"You will keep in perfect peace all who trust in You, whose thoughts are fixed on you! Trust in the Lord always, for the Lord God is the eternal Rock." Isaiah 26;3-4
So far, so good. We won't know how Ninlaro impacts his blood counts for a couple of weeks. And we won't know if it will cause problems with nerve damage yet. When he was on Velcade, it took several months before the nerve damage became evident and he had to stop the drug.
Colorado is having wildfires - one, the Weston Pass fire - is about 20 miles from our town. We can see the smoke, and yesterday the smell was very strong. It is not a danger to us; we have mountains between the fire and us. Hwy 285, the road we take to Denver, has been closed for several days.
We are praying for protection for the firefighters, and for the people who have had to evacuate their homes.
We are blessed, and we try to take nothing for granted.
Love to all.
"You will keep in perfect peace all who trust in You, whose thoughts are fixed on you! Trust in the Lord always, for the Lord God is the eternal Rock." Isaiah 26;3-4
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