Friday, August 10, 2018

Need PET scan, Ninlaro not working

The last blood test (MM panel) showed the Lambda light chains rose again. From 139.2 to 197.8. Normal is 5 to 26. So the Ninlaro is not improving things.
Today we went to Denver to see the Myeloma specialist. He wants Doug to have a PET  scan, to check for any new plasmacytomas.
  A Plasmacytoma is a plasma cell tumor that grows within soft tissue or in bone. Myeloma is a cancer of plasma blood cells. They originate in bone marrow.
The results of the PET scan will help the doc decide on future treatment. Whichever drug it is, we know it will be given by infusion.
The PET scan is scheduled for September 10, in Denver. Early a.m. and then we will stick around so the doc can get results and discuss with us. It might be a long day.

Denver traffic was very busy as usual, but no huge delays. We shared the driving and it was a safe trip, praise God!

Doug is still having the fatigue but he is coping well.
Meanwhile life goes on. We are looking forward to a birthday party for our son who will turn 50! How did that happen? He's a wonderful son and father of our grandkids.

Love to all.