Saturday, May 18, 2019

Infusion #11, fluconazole started

This has been a busy week, so this is three day old news!
Doug had his infusion on Thursday. His weight was 151, up a pound from two weeks ago. As long as he can stay in that range I think it will be okay.

Wednesday, the day before infusion, Doug had an appointment with the nephrologist (kidney doc). Myeloma can affect the kidneys, and Doug had kidney disease several years ago. He recovered from that with 70% kidney function but the nephrologist has been seeing him once a year. This time he said Doug doesn't need to see him unless something happens. That's good news.

Doug's lab numbers were good enough for infusion, which went well. We were in clinic about six hours - the lab was slow getting results back.
 Doug was scheduled for the regular monthly oncologist visit in clinic. Sadly, the oncologist we have gotten to know and like is out with serious illness. She's in the hospital in Colorado Springs and we all are praying for her. So we saw a "locum" (temporary) doc.
We mentioned that Doug's skin infections are not improving despite continued use of a prescription cream. So the doc gave Doug a prescription for an oral anti-fungal drug. He said it's only a two week supply, then he will reevaluate. He said it has side effects (what doesn't?) and probably best to use for a short time. Sure hope it works!

In addition to the myeloma, Doug has low immunoglobulins which is compounding the problem.
The doc said sometimes if a patient continues to have persistent infections, they give infusions of I.V.I.G but that's usually for sinus or respiratory infections.

Things are going along as well as can be expected here. Doug is managing his fatigue. He has started to drive again, but only short trips in town. This is encouraging.

We went to Colorado Springs twice this week; once to take our car to the dealership for recall work, then again yesterday to pick the car up. Meanwhile they provided a loaner for us to use. I enjoyed driving the 2019 Subaru Outback with all the new features. It had a large media/backup screen and a large digital speedometer display, plus lane departure warnings and cruise control that senses if the car is too close to one ahead - it slows you down automatically. Nice.

I'm tired from the highway driving but so thankful that I can do it.
Guess it's my turn for eye problems. My left eye vision has gotten much worse. Next Friday I have to go to a specialist in Colorado Springs to have a laser procedure done. Praying that God will keep me able to drive. Our wonderful neighbor has kindly offered to drive us on Friday.  We are blessed!

Love to all.

Today's verse:
I will rescue those who love me. I will protect those who trust in my name. When they call on me, I will answer; I will be with them and honor them.    Psalm 91:14-15

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