This afternoon Dr. Myers, the oncologist called. He said that he was musing on Doug's hip pain, and went back and looked closely at Doug's blood work. While it is correct that there is no sign of MM spike, the lab tests show a slow rise in light chains. "Light chain disorder" is what Dr. Myers calls it. He consulted with Dr. Matous, a MM expert who was Doug's stem cell transplant physician in Denver. Dr. Myers explained that Light Chain Disorder is a cousin of Multiple Myeloma, and is now "rearing its ugly head". So the cancer is back. Quite a shock, after being told just a week ago that Doug was still in remission.
Both docs think Doug needs to go back on Revlimid - the drug that helped so much in the very beginning.
We will keep the appointment to see the orthopod tomorrow, as something needs to be done regarding the hip area. Not only to relieve pain, but also to prevent possible fractures, which could happen because of the bone lesions.
So it seems the merry-go-round is starting. All we can do is take it one step at a time, and trust the Lord to guide us.
Wednesday, November 2, 2011
Hip Pain
First the good news: Last week Doug had his regular (four times a year) checkup with Dr. Myers, his oncologist. The MM panel shows no MM protein in the blood. Yea! Still in remission. Praise God.
Now the hip pain. Since last June or before, Doug has had intermittant left hip pain. He tried a series of chiropractic treatments which did not help. He tried a series of four accupuncture treatments in July, which did help for several weeks, but the pain came back. It seemed to come and go, depending on how much Doug was on his feet.
His regular doc prescribed physical therapy, which did not help. Finally in early October she ordered plain x-rays of the low back, hip and pelvis - results were negative.
The pain not only continues but is worse. Doug is taking oxycodone 7 mg. If he sits or lies down for a time, the pain goes away, but resumes if he is on his feet.
This last Monday, the doc ordered a CT scan. Now, finally, we got an indication of what might be causing the pain. The scan shows "multiple irregular areas of demineralization." Basically thinning bone. There are several areas of lesions on the hip and proximal femur ranging in size from 1.5 cm to 3.8 cm. The usual contrast could not be given due to Doug's 'abnormal kidney function' (it has been stable for quite a while).
Tomorrow we have an appointment for a consult with an orthopod in a neighboring town.
Now the hip pain. Since last June or before, Doug has had intermittant left hip pain. He tried a series of chiropractic treatments which did not help. He tried a series of four accupuncture treatments in July, which did help for several weeks, but the pain came back. It seemed to come and go, depending on how much Doug was on his feet.
His regular doc prescribed physical therapy, which did not help. Finally in early October she ordered plain x-rays of the low back, hip and pelvis - results were negative.
The pain not only continues but is worse. Doug is taking oxycodone 7 mg. If he sits or lies down for a time, the pain goes away, but resumes if he is on his feet.
This last Monday, the doc ordered a CT scan. Now, finally, we got an indication of what might be causing the pain. The scan shows "multiple irregular areas of demineralization." Basically thinning bone. There are several areas of lesions on the hip and proximal femur ranging in size from 1.5 cm to 3.8 cm. The usual contrast could not be given due to Doug's 'abnormal kidney function' (it has been stable for quite a while).
Tomorrow we have an appointment for a consult with an orthopod in a neighboring town.
Saturday, July 16, 2011
Busy summer
We have had two sets of people come visit us in Buena Vista this month. The first couple is from Texas - they are full time RVers who have their 'home base' at the same RV park where we have our lot. Margie and Edmund had never been to BV before and we enjoyed showing them around.
The second group are our long time friends from Omaha, the Stephan family: Gary and Jan, their daughters Lindsay and Brianne, and Brianne's husband Tavis. This is their third time here - they really enjoy Buena Vista. They all stayed at a local B&B; they rented a cabin right on the Arkansas river. In addition to sampling our good restaurants and all the gift shops, this time we did something new. We took a train ride from Leadville up into the mountains. Here is a photo of Doug and me on the train. I never did get a photo of all the Stephans together.
Doug's hip/back pain is still there but a bit improved. I wonder if the accupuncture is what helped. He hurts when walking too long. But he has been doing a lot of things around the house and yard, including painting some of the outside house trim.
Life is good. Praise God.
Love to all.
The second group are our long time friends from Omaha, the Stephan family: Gary and Jan, their daughters Lindsay and Brianne, and Brianne's husband Tavis. This is their third time here - they really enjoy Buena Vista. They all stayed at a local B&B; they rented a cabin right on the Arkansas river. In addition to sampling our good restaurants and all the gift shops, this time we did something new. We took a train ride from Leadville up into the mountains. Here is a photo of Doug and me on the train. I never did get a photo of all the Stephans together.
Doug's hip/back pain is still there but a bit improved. I wonder if the accupuncture is what helped. He hurts when walking too long. But he has been doing a lot of things around the house and yard, including painting some of the outside house trim.
Life is good. Praise God.
Love to all.
Tuesday, June 28, 2011
Summer is here
We have had a very good spring, and now summer in Buena Vista. Although we have had no rain for months, we are enjoying our usual delightful dry mountain weather. Hot sunny days and cool nights, no humidity and very few bugs. The Arkansas river is running fast and full, and so is Cottonwood Creek which runs through town.
The second week in June, we drove up to Cottonwood Pass to see the snow. The county had just finished plowing the road for the big "Ride the Rockies" bike event. You can see just how tall the plowed drift was.
The next photo shows Doug standing in front of the yellow climbing rose in our yard. This looks more like summer!
Our days have been busy with routine things like lots of yard work. Doug has been bothered with low back and hip pain, but that is not from his cancer - "just" sciatica. He tried the chiropractor without success and is now getting accupuncture.
Both Doug and I volunteered to help with our church's Vacation Bible School this year. That was a lot of work and called for lots of patience with the kids, ages 5 to 10. We had to pray for more energy for the adults and less energy for the kids! We ended up feeling blessed at the end of the week.
God has been very good to us, and we continue to live busy active lives. The myeloma is ever present in the background; we are happy to leave it there.
Life is very good, praise God.
The second week in June, we drove up to Cottonwood Pass to see the snow. The county had just finished plowing the road for the big "Ride the Rockies" bike event. You can see just how tall the plowed drift was.
The next photo shows Doug standing in front of the yellow climbing rose in our yard. This looks more like summer!
Our days have been busy with routine things like lots of yard work. Doug has been bothered with low back and hip pain, but that is not from his cancer - "just" sciatica. He tried the chiropractor without success and is now getting accupuncture.
Both Doug and I volunteered to help with our church's Vacation Bible School this year. That was a lot of work and called for lots of patience with the kids, ages 5 to 10. We had to pray for more energy for the adults and less energy for the kids! We ended up feeling blessed at the end of the week.
God has been very good to us, and we continue to live busy active lives. The myeloma is ever present in the background; we are happy to leave it there.
Life is very good, praise God.
Sunday, May 1, 2011
Smooth road
Our road on this myeloma journey continues to be smooth. Doug's latest results from the myeloma blood panel shows no sign of the M protein. All blood work is stable. He will continue to be checked every three months. We are so blessed.
Doug had his cardiology check up in April. An EKG was done and shows no problems. He only has to see the cardiologist once a year now. It is amazing to me that his heart is so well now, when two years ago he was on life support because of the virus in his heart.
Doug also went to the opthalmologist office for an optic nerve test. The Dr. calls the test results "worrysome". Evidently the optic nerve shows more damage from the glaucoma. (It can't be proven, but I am suspicious that the chemo caused the glaucoma.) The eye pressure is down, so that part is good. I put the eye drops in Doug's eyes every night, so I am sure he is taking them faithfully.
We are living a high quality life and are so thankful for this time. God is so good! We are looking forward to our oldest grandson's high school graduation in Denver later this month.
It snowed here in Buena Vista last night. We need the moisture, but a nice warm spring rain would be most welcome. However I sure can't complain about anything!
Love to all of you.
Doug had his cardiology check up in April. An EKG was done and shows no problems. He only has to see the cardiologist once a year now. It is amazing to me that his heart is so well now, when two years ago he was on life support because of the virus in his heart.
Doug also went to the opthalmologist office for an optic nerve test. The Dr. calls the test results "worrysome". Evidently the optic nerve shows more damage from the glaucoma. (It can't be proven, but I am suspicious that the chemo caused the glaucoma.) The eye pressure is down, so that part is good. I put the eye drops in Doug's eyes every night, so I am sure he is taking them faithfully.
We are living a high quality life and are so thankful for this time. God is so good! We are looking forward to our oldest grandson's high school graduation in Denver later this month.
It snowed here in Buena Vista last night. We need the moisture, but a nice warm spring rain would be most welcome. However I sure can't complain about anything!
Love to all of you.
Saturday, March 19, 2011
Two Year Anniversary of Transplant
Two years ago today was the stem cell transplant. Little did we know the rocky road that was ahead. But by the grace of God we got through it, and today Doug is well and thriving. His quality of life is excellent and our faith is strong.
We leave the warm weather of Texas next week for our mountain home in Colorado. We have made some good friends during our winter stay but we will be glad to get home. Doug already has an appointment with his oncologist.
We leave the warm weather of Texas next week for our mountain home in Colorado. We have made some good friends during our winter stay but we will be glad to get home. Doug already has an appointment with his oncologist.
I think this photo reflects the man of peace that Doug is.
God allows us to experience the low points of life in order to teach us lessons that we could learn in no other way. C.S. Lewis
Friday, January 28, 2011
Wintering in Texas
We are spending this winter in our RV, which is semi-permanently parked near Hondo TX, an hour west of San Antonio. Our RV park is a membership Co-Op, so everything gets done by volunteers. We have been very active; Doug is on the Kitchen committee and I am on the Membership committee. The park has a large clubhouse, and "social hour" three days a week. The main fund raising activity is dinners at the clubhouse. Doug and I are going to put on a baked potato supper with the help of other volunteers.
The weather here has been chilly at night but most days are pleasant. Usually it starts to warm up by February, and gets downright hot in March! We are enjoying our stay but will be glad to get home to Colorado in April.
Doug has a general practice physician here, and gets his blood work done at the local clinic. The results are sent to his oncologist back home. So far everything looks good.
We do have some sad news -- a man who just passed away from his MM. Mark lived on the east coast, so we never did meet him, but his wife kept a blog, much like this one. Mark was diagnosed in 2006 and had a stem cell transplant in late December 2008, just three months before Doug had his. After a remission, Mark relapsed in May 2010 and fought a hard battle with many complications. We are praying for his family.
We are constantly aware of the fragility of life, and so very thankful to God for Doug's health. We do not worry, but rather try to enjoy every day and trust the Lord to take care of us.
Love to all.
The weather here has been chilly at night but most days are pleasant. Usually it starts to warm up by February, and gets downright hot in March! We are enjoying our stay but will be glad to get home to Colorado in April.
Doug has a general practice physician here, and gets his blood work done at the local clinic. The results are sent to his oncologist back home. So far everything looks good.
We do have some sad news -- a man who just passed away from his MM. Mark lived on the east coast, so we never did meet him, but his wife kept a blog, much like this one. Mark was diagnosed in 2006 and had a stem cell transplant in late December 2008, just three months before Doug had his. After a remission, Mark relapsed in May 2010 and fought a hard battle with many complications. We are praying for his family.
We are constantly aware of the fragility of life, and so very thankful to God for Doug's health. We do not worry, but rather try to enjoy every day and trust the Lord to take care of us.
Love to all.
Subscribe to:
Posts (Atom)
