Wednesday, June 17, 2020

Not good news

This will be a short post.

Doug just got the results (on the patient portal) of the myeloma panel that was drawn June 11. 
 The Lambda light chains (cancer marker) have more than doubled since May. 
April was 29.0
May was 41.2
June is 92.6
Normal range is .5700 to 2.63
That means the Kyprolis is not working. 

We have not talked to either of the oncologists yet. 
We do have an appointment for tomorrow with the oncology NP who we like a lot. We could get in to see her faster than Dr. A the oncologist. 
We made the appointment so she can look at the lump on the side of Doug's head that has grown rapidly over the last couple of weeks. Doug had thought sure it was a cyst - so he didn't show it to me until it got big. 

There will be some kind of new plan - either add another drug to the Kyprolis or change the treatment altogether to something new. The last three treatments have not worked. 

We still have the telehealth (virtual) appointment with Dr Matous for this coming Monday. 

We are of course feeling down, but not shocked. Not much shocks us anymore. 

Love to all.

Quote: 
"We humans spend a good bit of our lives in places where it's too dark for knowledge and only the candle of faith can light our way."   W. Lee Warren M.D.

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